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  • Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders - Inspire
    The Ehlers-Danlos Syndromes and Related Disorders Support Community connects patients, families, friends and caregivers for knowledge, support and inspiration This community is sponsored by the Ehlers-Danlos Society, an Inspire trusted partner
  • Common ethnic origins with EDS? - Ehlers-Danlos Syndromes - Inspire
    EDS genetically inherited from my father This mutated gene has found its way to people of all colors and combinations all across the world My mom thought it was an Asian (and Native American) tendency because Asians tend to have more flexible collagen
  • EDS and aging - Ehlers-Danlos Syndromes - Inspire
    Here is my take Eds itself is a non progressive disease But it leads to other secondary problems like Dysautonomia, bursitis, tendinitis, tears dislocations ect that as they accumulate over the years cause more and more pain and damage
  • Dr. Recommendations for EDS POTS in Indiana - Inspire
    Dr Mason, in Auburn, Indiana, is a family practice physician His wife has vascular EDS and is also a nurse She is a member of the EDS support group for the Fort Wayne area The support group has a Facebook page I would suggest contacting them for resources
  • Steroids and EDS - Ehlers-Danlos Syndromes - Inspire
    I wouldn't want to tell doctors that people with EDS can NEVER get fluoroquinolones because some might get adverse effects--there might be someone with EDS who has a terribly serious infection which isn't going to respond to some other antibiotic Then it just may be worth the risk of taking the fluoroquinolone
  • Inspire
    Have questions about navigating your Inspire support community or need assistance from one of our Community Managers?
  • EDS and Cancer - Ehlers-Danlos Syndromes - Inspire
    There are only 3 case studies on breast cancer This is a HUGE gap in knowledge for treating EDS patients who have cancer and in knowing how the cancer may progress Cancer research already knows that tissue morphology play a role in how tumors spread EDS patients of all types have different tissue compared to non-EDS people
  • specialists in San Francisco Bay Area - Ehlers-Danlos Syndromes - Inspire
    - increases EDS awareness - some of these folks may actually have EDS and have been looking for an answer There is no need for one person to be burdened with being "in charge" at this level Several people attend gatherings in more than one county The Northern California folks doing this have discovered that - new friendships are formed
  • HYPERthyroidism and EDS - Ehlers-Danlos Syndromes - Inspire
    I believe that EDS may have affected the way that I absorbed the rai Si ilarly to the way we process novocaine, I absorbed it quickly, and rapidly became hypothyroid--way faster than they expected But it didn't stick around long enough to kill all the thyroid tissue and I had lingering symptoms (denied of course by the doctors I saw, despite
  • EDS and chronic cough - Ehlers-Danlos Syndromes - Inspire
    My mom has an extremely rare EDS related complication called Mounier-Kuhn Syndrome, or tracheobronchomegaly It causes chronic cough and chronic pneumonias in addition to other lung related issues She was diagnosed with bronchiectasis, a common component of this condition, before being given this over-arching diagnosis





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