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  • Spina Bifida Association
    We offer in-person and online education programs featuring medical experts, parents, and adults with Spina Bifida Advocacy We advocate for funding of Spina Bifida Programs at the CDC, disability rights, and affordable accessible health care
  • What is Spina Bifida? Resources and Prevention - Spina Bifida Association
    Spina Bifida is the most common permanently disabling birth defect that is associated with life Approximately 166,000 individuals in the United States have Spina Bifida It’s a type of neural tube defect (NTD) that occurs when a baby’s neural tube fails to develop or close properly – the literal meaning for Spina Bifida is “split spine ”
  • Chapters - Spina Bifida Association
    VERMONT – SPINA BIFIDA ASSOCIATION OF GREATER NEW ENGLAND Serving Maine, Massachusetts, New Hampshire, Rhode Island, Connecticut and Vermont Executive Director: Jean Bertschmann P O Box 681 Natick, MA 01760 888-479-1900
  • National Resource Center - Spina Bifida Association
    SBA’s National Resource Center is the only service in the United States exclusively dedicated to addressing your questions about living with Spina Bifida The National Resource Center offers help in English and Spanish, and can help you: Find the closest SBA Chapter or support community; Identify the nearest Spina Bifida clinic or center of care
  • Adults - Spina Bifida Association
    The number of adults with Spina Bifida continues to grow About half of people living with Spina Bifida in the United States are adults For many years, the medical community has focused on providing care for children and offers many children’s clinics throughout the country
  • What is Spina Bifida? - Spina Bifida Association
    Spina Bifida is the most common permanently disabling birth defect that is associated with life in the United States It's a type of neural tube defect (NTD) that occurs when a babies neural tube fails to develop or close properly - the literal meaning for Spina Bifida is "split spine"
  • Contact Us - Spina Bifida Association
    We want to hear from you Learn how you can contact the Spina Bifida Association For general inquiries Spina Bifida Association 200 Duke Street Suite 300 Alexandria, VA 22314 Phone: (800) 621-3141 Email: [email protected] To Join our National Email List You may opt in to receiving national email updates using this online form Donations
  • Ways to Give - Spina Bifida Association
    By including the Spina Bifida Association in your estate planning, you can ensure that our vital programs and services continue to thrive for generations to come Whether you choose to make a bequest, establish a charitable trust, or name SBA as a beneficiary of your life insurance policy, your planned gift will provide critical resources to
  • Our Advocacy Priorities and Updates - Spina Bifida Association
    The Spina Bifida Association promotes policies to help ensure that all people with Spina Bifida have access to high-quality, specialized care and adequate, affordable health insurance We also support policies that contribute to a health care system that best serves all people living with the birth defect and its related conditions
  • Adaptive Summer Camps - Spina Bifida Association
    2025 Spina Bifida Clinical Care Meeting | June 6-7, 2025 Walk-N-Roll for Spina Bifida Volunteer Participate





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